Tag: Fibromyalgia

Don’t You Know Other People Have It Worse Than You?

Published on by Scott Williams8 Comments

So how are you doing?

Anyone with Fibromyalgia, CFS, depression or chronic pain will tell you that this is not necessarily a fun question to hear. It is often a flippant question, given as an opening to something else or in passing. Anyone who suffers on a daily basis know that most people aren’t really interested in the truth, they are just making conversation. In my work with chronic pain patients this often comes up – the feelings of loneliness and misunderstanding. It’s often easier just to say, “fine”, no matter how you feel. No stable person wants to be a burden. Few people are willing to listen if you really need to talk, anyway.

Fine – F**ked up, insecure, neurotic, emotional. Ya, I’m fine.

Of course there are those people who love to hear your problems. They practice what I like to refer to as, “amateur psychology hour”. They have all kinds of advice for you. They also love to compare. Sure you may have a chronic back problem but they have a sore back too and they still go to work. You look fine, so you should be fine. They read an article, or watched Doctor Phil (before he blew it on Twitter last week) and they know how to help you. Just walk more. See their naturopath. Read this or that book or website. Sleep without any underwear facing east (actual advice). Why are you still depressed? Don’t you want to get better? You have too many metals in your system. Oprah talked about your problem just last week. Stop whining. Look on the bright side. Don’t you know other people have it worse off than you? Count your blessings.

Thanks for that. It really helps.

It’s not that the aforementioned advice can’t be helpful. Clichés are popular because they contain an element of truth. Your attitude really does, sometimes and in some ways, determine your altitude. If you change your mind your really will change your life. The problem is timing. If you are so depressed you cannot get out of bed, going for a half hour walk or praying for an hour may not be helpful advice. Eating more kale probably is a good idea but won’t cure your chronic pain. Dieting is a good thing but sometimes you have other issues screaming for your attention. It’s important to recognize that making grandiose prescriptions for other people’s problems isn’t always helpful or appreciated.

Mother Teresa was once asked: “Why do you give them fish to eat? Why don’t you give them a rod to catch the fish?” She responded: “But my people can’t even stand. They’re sick, crippled, demented. When I have given them fish to eat and they can stand, I’ll turn them over and you give them the rod to catch the fish!” Profound words. No one knows what you are going through today. You may get all the best advice in the world but you still can’t stand. Great words are only helpful if you are able to hear them through the fog.

Years ago, when my life fell apart, I heard hundreds of pieces of advice but I could not receive them. What did matter, however, were those who climbed down into my pit and cried with me, fed me, hugged me, and loved my kids. All the best counsel in the world wasn’t as important as a casserole, or a coffee, or a gift for my boys. It didn’t matter if other people had it worse, I could barely cope with what I had.

“It is our suffering that brings us together. It is not love. Love does not obey the mind, and turns to hate when forced. The bond that binds us is beyond choice. We are brothers. We are brothers in what we share. In pain, which each of us must suffer alone, in hunger, in poverty, in hope, we know our brotherhood. We know it, because we have had to learn it. We know that there is no help for us if we do not reach out our hand. And the hand that you reach out is empty, as mine is. You have nothing. You possess nothing. You own nothing. You are free. All you have is what you are, and what you give… We have nothing but our freedom. I have nothing to give you but your own freedom. If it is the future you seek, then I tell you that you must come to it. You cannot buy the Revolution. You cannot make the Revolution. You can only be the Revolution. It is in your spirit or it is nowhere.”
Ursula Le Guin, The Dispossessed

Reflections From The Road (Part 2)

Published on by Scott Williams6 Comments

Winfrey on the first national broadcast of The...Turn on the TV anytime and you can find amateurs and professionals with varying degrees of emotional snake oil sales gimmicks for helping you deal with the pressures in your life. Oprah has made billions pretending to be a psychologist and has launched the careers of myriads of self-help gurus. Arguably she has been an excellent proponent of self-care and has called attention to the plight of those struggling with mental health issues. I owe her a debt, I suppose. She and her bald friend, among others, have made going to a counselor fashionable. It is no longer taboo to see someone about your failing marriage or your personal problems. I fear, however, that the pendulum may swing too far now that obesity and anxiety, as well as depression and addictions, are now reasons to go on disability. While this may help some, many others will undoubtedly line up to exploit the opportunity to get ‘something for nothing’. Even more problematic is the reality that going on disability is often the worst thing some of these people can do. Every day at the addictions center where I work part-time I have to bite my tongue when another addict goes on disability in spite of the fact that their ailment is self-induced and some are looking, yet again, for a feel good solution to a difficult problem. Not working can be the absolute worst thing you can do in addiction recovery. We have known for generations that “idle hands are the devil’s workshop”.

Recently I read a great article  on Cracked.com  called, “You hate yourself because you don’t do anything”. It’s one thing to take time to address your problems. It’s another thing altogether when a recovering addict hasn’t worked in years and blanches when I suggest one of their problems may, just maybe, be that they have way too much time on their hands.

In counseling I often come across unemployed people who tell me they are too busy to do what I am suggesting they need to do to get better. I know this is politically incorrect but I often look them straight in the eye, screw up my most professional looking expression, and ask, “Are you unemployed busy or really busy?” Granted some people are doing many good things, but often those I run across will admit that they had to come to see me at ten and have to go to the Walk-In Clinic at three – they’re swamped. They have succumbed to a lifestyle that lacks productive routine and are not working towards re-engaging in society. We only have one life, one precious and finite life, to experience and contribute. Spending that life in poverty and boredom, when we had other options, is a tragedy that affects the generations to come. Don’t misunderstand me, I am a huge proponent for the plight of the poor and hurting. That is why I am so passionate when such a lifestyle is avoidable. Some people need to get off their ass and help themselves. No one cares about your problems as much as you do and this isn’t television – there is no knight in shining armor, no billionaire talk show host that is going to swoop down to rescue any of us.

I work in a Fibromyalgia/Pain Clinic and see hundreds of people every year who have been dealt the worst hands imaginable. I have patients who can barely move, let alone work. Every week I speak with the most amazing people who feel they have “lost their life” to terrible illnesses. Their courage to move forward, in spite of chronic pain, fatigue, and illness, is inspiring. Many have been abused by the medical system and offered horrible medical and psychological care. They would love to work again, run again, contribute again, but cannot. It is maddening how few of them are accepted for disability, and they are often subjected to the cruelest interrogation by insurance companies who belittle them and subject them to emotional and financial hardship. There is something wrong with a system that gives money to able-bodied twenty year-olds who are too lazy to work yet rejects someone who has legitimate and life-altering illness.

Personal growth is about movement. I am writing a book right now called, “How to Improve Your Life 52%”. Real change is about doing the little things. As I have said on many occasions, drastic change is rarely lasting. It is all about momentum, moving forward inch by inch, a little bit day-to-day. Maybe that means getting up at the same time every day. Perhaps that means listening to an audiobook on psychology or self-help. Some of us need to start down the road to reconciliation by making a phone call. You might need to put down that doughnut or only smoke ten cigarettes a day. The key is to get started – do something. Doing something little is always better than planning to do something big. Sometimes change starts by getting off the couch. You may not be able to do a hundred pushups but you can do one. Baby steps.

I think I will take my own advice and get up and stop writing…

The End Of All Our Exploring

Published on by Scott Williams7 Comments

Finding you can have a life after all is an amazing thing…

I wrote those words to a close friend this week. I know this is true because I have lived it. I have been to the end and I have been back. I know what it is like to care less if your world burns. I know what it feels like when your heart breaks. I know why people kill themselves.

It must be true that we attract what we are because many of my readers (although many seems a little off) can relate to the last paragraph. So many of us have been scarred. Many have known the “dark night of the soul”. Unfortunately many of us have learned that there are certain lessons you can only learn in pain.

I remember, some time ago, listening to a young speaker talk to battle-hardened veterans of life’s misery. People who had battled addictions, death, heart-break, staggering loss. He told the audience a story of his struggles – pitiful middle-class problems that were trifling and testimony to a life that had never suffered. It’s the reason people don’t like marital advice from a priest, or sexual advice from a Methodist, or advice about generosity from a Scotsman. There is something powerful about listening to the stories of others who can understand your loss. If you don’t believe me come to the Fibromyalgia Clinic sometime and listen to a new client once they understand that someone understands them and no one thinks they’re crazy. The power of a shared experience, no matter how bad.

It’s nice to know that even though you are walking through hell you aren’t walking alone.

You Just Got Hit

Published on by Scott Williams3 Comments

Bad day“They have a saying in boxing – everyone has a plan till they get hit… well guess what, you just got hit. Whether or not you get up is up to you.”  from The Ghost And The Darkness

I remember, years ago, hearing a minister talking about the worst day he ever had. I won’t go into details but suffice to say, it wasn’t much of a day. No one died, nothing bad happened. He was inconvenienced. I remember hearing him and thinking, “That’s the best you got?”

Some people get through lives relatively unscathed. I don’t know them personally but that’s the rumor. For the rest of us, however, life is a series of adventures and misadventures. I have a theory that almost everyone has experienced some form of trauma by the time they are forty. I can’t prove this but it seems to be true in the world I live. To quote the greatest family movie of all time, The Princess Bride, “Life is pain highness, anyone who says different is selling you something.”

We all get hit, from time to time. The older I get the more I notice how differently my life has turned out than I had anticipated. You can have all the plans in the world but they won’t help you if you get Fibromyalgia, or cancer, or are in a car accident. We are all just one bad moment from having our lives drastically changed. Twelve years ago I had my life all planned out, then I got hit. Some hits you never fully recover from. Perhaps that shouldn’t even be the goal. Trauma changes us. The trick may be to use situations we hate to change us in the right direction.

Life isn’t fair. Sometimes the rich do get richer and the pretty people do get all the breaks. Sometimes the jerks yand the liars do get ahead and there really seems to be no justice in the world. The Nortel legal battle in Canada, among others, demonstrates that the laws that apply to some, do not necessarily apply to the rich. The right set of high-priced lawyers changes everything.

Have you ever noticed that rich men usually have better hair? There is no justice.

It’s easy to get bitter.

But it doesn’t help one bit.

Have you ever noticed that the older people get the more they become a caricature of themselves? It is as if our personalities are water-soluble and as we age more and more of the water evaporates, leaving us with more “us”. As the capacity to exercise social restraint wears away you begin to see who that person really is. Old people seem to go one of two ways; either they become more gracious, more beautiful, or they get more bitter. So many bitter people.

I do not want to become bitter as I grow older. Already I can see the my tendency to become judgmental, or critical, or just grouchy. There have been people who have hurt me deeply and my natural inclination is to hold grudges and carry that pain forever. Perhaps I am not alone in this.

At the end of the day, like most things, it is about choice. Choice and a great deal of hard work. Left to our own devices many of us will gradually slip further and further towards negativity. Awareness is important. Hard work is much more important. Working on myself cannot, must not, be something I only do when I need to get something or someone. My life is not a thing to be fixed, it is a project to be nourished.

I know from personal experience how damaging it can be to live with bitterness and unforgiveness. I like to say it’s like taking poison and hoping your enemy will die. And it really is that harmful to us to live this way.
Joyce Meyer

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