This Is How I Was Made

Repeat after me, “This is how I was made”.

The word “cosmetics” is said to have a few origins but most believe it came from the Greek word “kosmos”, to make order out of chaos. A brilliant word. Eyeshadow, apparently, is intended to address an issue or enhance a feature. I guess. I’m not even sure what eyeshadow is. Which is the one where you use the Nazi torture device to pull on your eyelids? Reason number 127 why it’s great to be a guy. That peeing standing up thing is like number one through sixty-four. But I digress, as usual.

We all have parts we are not very proud of. If this hasn’t been your experience then just wait a year and get back to me. Gravity works. Even the beautiful people look like crap under fluorescent lights and north of forty. This is, sadly, referred to as reality. There are some things even Botox can’t fix.

I have worked with Fibromyalgia patients for a number of years now. Some of you who read here know me from that world. Fibromyalgia is a fascinating disease. It is literally true that, at least in my small piece of the pie, a majority of doctors still don’t believe in FM. I was once a skeptic; then did Intake for 5 years at a chronic pain clinic.

There are valid reasons why many do not believe in Fibromyalgia. We do not understand completely, and often this becomes a diagnosis of exclusion for many for whom the medical system has failed. There seems to be a myriad of causes and an internet full of “cures” which do not work. But that’s not why I am talking about FM.

I have patients, and some of you know who you are, who still struggle, often after a decade or longer, to even accept that they are sick. There is something insipid about this illness that, at least initially, seems random and normal and most undiagnosed Fibromyalgia patients tend to believe they may be “wimps”. Friends are often quick to point out that they “have pain too but still go to work so what is your excuse?”. In Canada we apologize before and after but it amounts to the same thing.

I cannot tell you the number of times FM patients have whispered to me that they secretly wish they had any other disease, even cancer. I am fully cognizant of how politically incorrect that sounds, but I am not actually advocating this position. I am only telling you what real people say all the time. So the question for the rest of us is, why would anyone wish for cancer?

No one really wants cancer, so a few of us can unbutton our corset a tad and just think about something we may not have considered. Cancer patients have Facebook Rallies and fundraisers and are said to be “courageous” and an “inspiration”. FM clients are often labeled as lazy or whiny or in the throes of a fake illness. I am in no manner seeking to diminish the terror of cancer, I’m just telling you a story. Families rarely understand, and I have watched spouses leave, and there is often a long slide towards immobility, a briefcase full of medications with side effects, and poverty. There are no parades for someone who has chronic fatigue, pain that changes almost daily, a labido that moved to Orlando, and looming mental health issues.

So when someone tells me they aren’t sure they have Fibromyalgia even though someone with a Mercedes told them, you can begin to appreciate how difficult it must be to accept something that no one understands, doctors dismiss as depression, displays symptoms which perpetually change, all with a spouse who is constantly disappointed in you.

You should be able to do more. You should be working or helping or horny or superdad or whatever. Who needs someone else to remind you of your shortcomings when you have the list memorized?

In counseling we come across Should Statements every day. I should be doing something else, right now. You should lose weight and you should go to the gym and you should eat more vegetables and less red meat. That’s super swell but you are still going to get old and die and I will be damned if I am going to go out without eating a few more KitKat Blizzards. Screw broccoli.

Body image is a little slice of that same pie. Umm, pie. But I digress.

I was never the eye-candy. When people who will never be the prom queen hear about the objectification of beautiful people it’s natural to secretly wish that someone would look at us like a piece of meat, as horrible as that may sound. I have had multiple clients admit this horrible secret when no one is there to judge them. Humanity spends billions trying to cover up stretch marks and crows feet and cellulite and baldness and facial hair and that unibrow your sister has going on. On television the hero is always beautiful and Steve Buscemi is never the leading man unless they want someone who is Hollywood ugly.

The only thing worse than constantly getting hit on is never getting hit on.

Most of us feel unappealing, from time to time. I have a growing list of things I do not like about my physical presence and you probably have one as well. I have spent years feeling ashamed of physical characteristics over which I have virtually no control. Time to give up, but not in a bad way.

You should still shower.

Give up the guilt and the pain and the constant need to measure up to standards imposed by Photoshop and duckface selfies. Give up the perpetual micromanagement of a battle you cannot win’ that most of us chase for all the wrong reasons. Antiperspirant, do not give up. You can still love your hair and buy Saxx underwear if you can afford it, that’s not the real issue. It’s not even about body enhancement or hair plugs or spray-on tans which look like you eat too many carrots, even if no one will tell you to your face.

Let’s all repeat together, “This is how I was made”. You can’t change some illnesses, injuries, or flaws. Sure, you can spend the money and do the stuff that makes you feel good about yourself, but perhaps it’s time to recognize that this is only a shell and I need to stop basing my self-worth on whether or not I look good in Lululemons.

I do not.

This is how I was made. I repeat it in my head, “this is how I was made”. I can either deal with this or live my life wishing I someone different. This is psychology, and psychology isn’t about words like “fair” or “should” or “someday”. We don’t learn to “wish upon a star” or base our retirement on winning the lottery. This isn’t about me pretending to have it all together or telling you something you haven’t heard a hundred times. This is about doing it, finally. Many of us have spent our lives caring far too much what random strangers and intellectual car bumpers think of us.

One of the sad truths you observe, sitting in this chair, is that most people do not learn this. It is tempting to hope that one day, when your ship comes in, things will finally line up for you, and the world will make sense, and you will get your much deserved reward.

In counseling we call this bullshit.

I watch people come back, year after year, and nothing has changed and they are still waiting for the world to punch their dance card (I’m not even sure what that means). Dr. Seuss sums it up swimmingly in his classic “Oh The Places You’ll Go”. I have referred to this psychological masterpiece on another occasion but these words continue to haunt:

Waiting for a train to go
or a bus to come,
or a plane to go
or the mail to come,
or the rain to go

or the phone to ring,
or the snow to snow

or the waiting around for a Yes or No
or waiting for their hair to grow.
Everyone is just waiting.

Waiting for the fish to bite
or waiting for the wind to fly a kite
or waiting around for Friday night
or waiting, perhaps, for their Uncle Jake
or a pot to boil,
or a better break

or a string of pearls,
or a pair of pants

or a wig with curls,
or another chance.

Everyone is just waiting.

Everyone is just waiting.

This is the way I am. Tall, balding, aging, deeply flawed, excited, passionate, unpretty, childlike in wonder, and addicted to learning. That (and my Canadian Tire pool) needs to be “enough”. Fibromyalgia or not, beautiful or not, rich or not.

Repeat after me, “This is how I was made”.
Some of my FM clients are shaking their heads “no!”.